President & Chief Executive Officer

Applicants who interested in applying for this position, please refer to "Application Process" for application instructions.


We are seeking a new President & CEO to lead Cystic Fibrosis Canada’s strategic direction and, operations. The President & CEO will report to the Board of Directors through the Chair, and will work closely with employees, volunteer leaders and partners to move our organization forward. 

The primary focus of the role is the continued implementation of our strategic plan, ONE CFocus 2020, ensuring that the national operational plans and objectives are aligned to the strategic plan for the delivery of programs, revenue generation, communications and advocacy, clinical/scientific initiatives, and research. 

We are at an exciting point in the fight against CF. Global Cystic Fibrosis research has made huge strides in past years, and there are many potentially life-altering therapies possible in the near horizon. This is changing the landscape for those with Cystic Fibrosis, and their families. The CF Canada community looks forward to welcoming a new President & CEO who is excited about and committed to our mission and vision, and who wants to partner with volunteers, partners, donors and employees to make it a reality.

To view the full Executive Brief, please visit:



As an internationally recognized leader in funding innovation and clinical care, CF Canada is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis (CF).  Since establishment, thanks to the generosity of our donors and volunteers, Cystic Fibrosis Canada has invested more than $244 million in leading research, innovation and care. As a result, Canadians with cystic fibrosis have one of the highest median survival rates in the world. CF Canada invests more in life-saving CF research and care than any other non-governmental agency in Canada.

Cystic Fibrosis Canada has 50 volunteer Chapters located across the country. We could not do our important work for Canadians living with the devastating impacts of this disease without the support of our dedicated Chapter volunteers and partners like Kin Canada. Chapter members raise funds, promote public awareness for cystic fibrosis in their communities, serve as a local resource to partners, and support Canadians with cystic fibrosis and their families.

Cystic Fibrosis Canada dedicates its efforts in four key areas: Healthcare, Research, Advocacy, and the Canadian CF Registry.



The successful candidate will be excited by the opportunity to join an organization that, with its partners in Canada and beyond, is on the verge of a breakthrough of historic proportions. Recent advances in drug therapy convey a realistic possibility that a control for this disease will be available to the majority of persons with CF in the foreseeable future. Our new President & CEO will need to help drive the organization towards this successful conclusion while recognizing that, for some, the ravages of the disease will be irreversible.

Our new President & CEO will bring a strong understanding of the healthcare system in Canada, and how this affects people with rare diseases like Cystic Fibrosis. Confident and articulate, the new incumbent will communicate passionately about Cystic Fibrosis Canada, and will inspire others to become involved. Given that the new drugs attacking the cause of CF, not just the symptoms, are very expensive, our new leader will need some competence in ensuring direct and capable advocacy with provincial governments and the general public.

Calm, competent, and credible, the ideal candidate will possess strong leadership capabilities and an excellent grasp of business fundamentals. A stabilizer who can steadily move the organization forward on our strategic plan and goals, the President & CEO will coach our employees on the implementation of our strategic plan into tactical operational plans for each unit. In addition to sharing and demonstrating the values of CF Canada, the successful candidate will bring a high-level of emotional intelligence, and will balance empathy with executive competence.

The new incumbent will have a strong grasp of big-picture organizational strategy, and will support the Board in its focus on strategic oversight. Pragmatic and objective, the successful candidate will establish clear priorities, and will be capable of identifying challenges and making tough decisions. The President & CEO will possess a high level of curiosity, and will foster a culture of innovation across the organization.

The ideal candidate will bring a strong understanding of the not-for-profit landscape in Canada, both from healthcare organization and charitable contexts. Deep experience working with volunteers and boards is expected, and ideally candidates will have supported Board volunteers and served as a Board volunteer. The new incumbent will be diplomatic and at ease working with a wide range of people and personalities. Comfortable with multiple perspectives and constructive debate, the successful candidate will guide and focus the Board on how to best deploy its collective passion, skills, and ideas.

Given the organization’s imperative to raise additional funds, the President & CEO will have an ability to lead an organization that can strategically grow revenues, and will be actively involved in seeking funds in partnership with employees and volunteers. The ideal candidate will help to encourage and coach Board and Campaign Cabinet members in becoming effectively involved in identifying donors, opening doors, and stewarding the involvement of donors. Comfort in understanding and explaining scientific research is important, and previous experience in fundraising for research is critical in this role.

Approachable and relatable, the ideal candidate will have exceptional interpersonal skills. The new incumbent will value the volunteer roots of our organization, and will exhibit warmth, compassion, and kindness. An intent listener who connects deeply with people, the President & CEO will respect and appreciate the contributions from volunteers, donors, partners, and employees across the country.

The successful candidate will manage with clarity and consistency, and will help us to attract and retain the right people. A strong delegator who empowers employees and develops leaders, the ideal candidate will provide a clear vision and clear expectations.

Accessible and encouraging, the President & CEO will form strong relationships with senior leaders, support them in achieving mutual goals and provide the coaching and guidance necessary, with a view to future succession planning.

Proven experience as part of a senior leadership team, ideally in a complex national organization, is essential for this role.

Able to think nationally, the successful candidate will understand the breadth of our country, in terms of the diversity and uniqueness of regions, cultures, and languages. Capacity in both of Canada’s official languages is an important asset in this role to ensure the continued engagement of, and strong relationships with Francophones in Quebec and other parts of Canada.



KCI (Ketchum Canada Inc.) has been retained to conduct this executive search on behalf of the Board of Directors of Cystic Fibrosis Canada.  For more information about this exciting and inspiring senior leadership opportunity, please contact Tara George, Senior Vice President by email at

To view the full Executive Brief, please visit:

Interested candidates should submit their resume and a cover letter of interest to the above email address no later than January 31, 2018.  All enquiries and nominations will be kept in strict confidence.